Thursday, July 24, 2014

East Meets West...

This morning started out how every morning this week has begun.  Each morning, while Hope takes a little nap, Brian and I attend Lego Therapy together in "his" (Gavin's) bedroom.  Oh, don't even laugh.  Lego Therapy is very serious.  *wink*  It's good for him - he uses his imagination and is learning how to build things.  It's good for me!  I get lost in the mindless connecting of lego bricks.  But it's best for us.  We never look at each other - only at our "masterpieces."  The activity and the lack of eye contact removes the vulnerability... and allows Brian to open up to me in ways he usually doesn't.
Yes, Lego Therapy is very serious.  And I'm honored that Brian invited me to join him.
After this morning's therapy, we got in the car to take Hope to the doctor.  While we were in Ocean City, a rash that was "here and there" and not worrying me much at all turned into a fully body rash that looked familiar.  It didn't look exactly like the contact dermatitis that I was used to seeing with Gavin over the years.  And it didn't look exactly like the eczema that I also saw with Gavin.  I had my suspicions... but I wanted the doctor to see her to rule out any illness or other reason for the rash.

First she got her weigh in...
She looks enormous here - but she's actually quite petite!
Hope's fightin' weight is now 16lbs, 12oz.  She will be 8 months in less than a week.
As soon as the pediatrician walked in and saw her rash, he said it was classic eczema.  I felt relieved that it wasn't an illness or anything very serious.  I left with a script for a steroid cream that I likely won't use.
Our next stop was to see Dr. Kang.  Because of her (and the other alternative doctors and nutritionist that I have on my "team") I know that everything begins internally.  When I was told it was Eczema and I should just moisturize and hope that she grows out of it down the road, I felt that it couldn't be entirely true.  Don't get me wrong - I have great respect for our pediatricians (they know that).  And I'm not trying to come across like I know more than they do (because I don't!).  I am really grateful that they have always been supportive of me - since Gavin was an infant! - as I tried all different types of alternative therapies and medicines and treatments... and then reported back to them with my results.  Some worked - some didn't - but none of them harmed my children along the way.  I need all of our doctors - traditional and non-traditional.  East meets West in our marriage... and in our healthcare team!
My suspicion going in to see Dr. Kang was that this was food related - and I strongly suspected Mango.  Hope didn't have any of these issues until I introduced food.  Then this morning I received an email from a reader who, coincidentally, uses the same type of doctor that does the same type of muscle testing that Dr. Kang uses.  She told me about her daughter who would get a rash every time they'd go to the beach (or throughout the summer) - and it turned out to be an allergy to sunscreen!  Bingo!  I hadn't thought of that!  So after reading her email, I quickly grabbed the sunscreen I used on Hope (Badger Sport Zinc based sunscreen) and headed out the door.
We got to Dr. Kang's and I told her about the new diagnosis... and my theories about the food and sunscreen.  With Hope sitting in her stroller, she tested me first.  I didn't show any reaction to the foods or the sunscreen.  Then she picked up Hope and put her down on the table next to me.  I held her hand with the vials representing the foods sandwiched between our skin.  Sure enough - she showed a reaction to fruit - evidenced by my weakness as Dr. Kang tried to push down my arm.  When she tested me without Hope, she couldn't push my arm down at all!  Next, Dr. Kang smeared some of the sunscreen onto my arm.  I held Hope's hand again and - she showed a reaction.  Can you believe this? You can't make this stuff up!!
Dr. Kang's advice was to follow the same back massage treatments on Hope that I have done (and still do) on Brian.  I will put mango in a glass baby food jar (and every other fruit I feed her - banana and avocado - just in case) - tuck the jar into her pant leg or waistband so it's touching her skin - and massage down both sides of her spine in a tapping motion.  This will balance her immune system and desensitize her to the "allergens."  I will also do this with the sunscreen.  "Why don't you just use a different sunscreen??"  I hear you asking.  Because I feel like I found a quality sunscreen that is safe and better for their skin than many others out there.  I'd rather make this one work for her than try a list of other ones that might cause a reaction - maybe even a worse one!  
She also suggested that before I introduce a new food, I should do the glass jar technique for two days prior.  This should eliminate any problems with the new foods!  And, she truly felt this would eliminate the eczema issues.  Since I was able to eliminate Brian's peanut allergy using her techniques, I tend to believe her.  Also, if you remember, I posted about Brian's skin issues several weeks ago.  Dr. Kang picked up a detergent allergy (which I eliminated) and an immune deficiency which showed up as skin rashes.  I diligently did back massages and he had two acupuncture treatments... and he's as good as new.  His skin looks great!
This does not mean I don't believe our doctors or don't respect their advice.  This just means that I'm open to the possibility that there could be another solution... a different way.  Knowing that it can't hurt Hope to try, I am going to be diligent with working to eliminate this issue.  I only wish that I had known Dr. Kang - or known this way of approaching illnesses and diagnoses - when Gavin was a baby.  He suffered terribly from eczema and contact dermatitis and reflux and allergies.  Knowing what I know now - and having the support I have now - I am sure we could have helped him so much more.  But when you know more... you do more.  And I know that he is smiling and proud in Heaven as I "do more" for his baby sister.
This will be a journey - and I feel confident that the outcome will be successful, but I could be wrong!  I'm taking you all along with me so we can experience this and learn together.  I'll be documenting the journey with photos of her rashes and we'll hopefully see them all disappear.  Here are some photos from today... 
 You may have noticed in some of the photos that Hope looks like she's crawling.  She is!!  It's very new that she's crawling on all fours.  I took this video today and it captures all the great things she's been doing lately:  crawling on all fours... motor planning as she figures out how to get to and then pick up what she wants... going from laying down to sitting up... army crawling (or doing the worm depending on how you look at it or what music is playing in the background at the time)... and problem solving!!  Check it out...

And finally - Brian's "Swim Fast" lessons.  He is doing great and having a lot of fun!  Today is day four and he was able to float on his back and flap his arms and legs to keep his face out of the water (for the most part).  His instructor (named Katie!) touched the back of his head here and there- but he mostly did this on his own!  I was really impressed!  (And Brian was extremely proud.)




8 comments:

  1. I may have missed it, but if you were able to clear up eczema for Brian, I would be interested in hearing how you were able to do that. My son suffers from very bad patches of eczema and I would love to be able to clear it up for him!

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    1. Crystal, you can read about Brian's recent skin issues and how Dr. Kang helped him in this post: http://www.kateleong.com/2014/05/brians-medical-mystery.html#.U9JJaIBdXEc

      He had a contact allergy to a common detergent at a friend's house... and keratosis pilaris. He literally had skin that looked like a lizards - sudden onset and itchy.

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  2. Have you heard about Brickfair? It's a lego festival where people build crazy & cool masterpieces out of lego pieces. I think Brian and your family will really enjoy seeing all the creations. The next fair is next Saturday at the Dulles Expo Center in Chantilly, Virginia. It's about a 3 hour drive from PA, I believe, but maybe it can be a fun vacation for the family! http://www.brickfair.com/

    Also, I hope the rash on little Hope clears quickly. The allergy testing you've done on your kids is really interesting!

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  3. If you are open to trying a new sunscreen I havee a suggestion. There's a company called Beautycounter & they make safer skincare including a kids line & sunscreen. You may be able to purchase through me if interested, but I don't think I'm still a consultant. I'm so not trying to sell a product (like I said I don't even think I'm still a consultant), I just believe in the company & their safer products. Best of luck in getting things under control with the rash & allergies! Your munchkins are so precious!

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  4. My sons eczema from sunscreen started to clear up after one use of the aloe and herb soap from hallelujah hive. I bought it from them at the green dragon farmers market but you can order their products online. http://www.hallelujahhive.com/soaps.html

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  5. I LOVE the pictures you paired with this. Hope's expressions say it all (that she is very loved and happy!).

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  6. Did you ever try a hazelwood necklace for Gavin's eczema? I have friends whose daughters wear them with great results!

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  7. I have a very severe allergy to sunscreens. I mean, I get hives, eczema, and the same looking rash that Hope gets all at once. I am LOVELY at the beach!! In any case I have searched and searched for the most non-allergic sunscreens. The problem I have with Badger is that it is very thick and I feel like it makes my eczema worse. I have had more success with the think baby and think sport sunscreens (they get equal or better ratings then Badger on the EWG website). They tend to be thinner and I just feel like they did not leave as much residue at the end of the day. I think I have tried every sunscreen on the market at this point, an exaggeration but I have tried ALOT. I try to go by the EWG ratings as most 1s or 2s are worth a try for me. I do like Beyond Coastal products too. I still often react and when we go to the beach I try to cover up instead of sunscreen when I can. I am local and I have been thinking about checking out your Dr. Kang for myself and my youngest. I have a peanut allergy, the sunscreen allergy, and randomly break out in hives. It can't hurt! My youngest has FPIES to oat products (a condition that makes her vomit until she is in shock/dehydration). She may have outgrown it but to test her we have to admit her to the hospital and put an iv for hydration just in case she starts reacting. We are just avoiding oat products!

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