I'm going to take the weekend off from the blog.
Tonight and tomorrow we have Ed's cousin, Glenn, visiting from New York and the house is already a bit more cheerful. Brian is laughing more, if you can imagine that, and Ed is looking forward to a fun night out with his good friend.
In other news, I am grateful for the connections I made through Gavin. Thanks to an incredible nurse practitioner, Meganne, who works with Dr. Bonnemann at the NIH (you can read more about that our experience with them here!)... I was able to get hooked up with an excellent genetic counselor for Project Hope. I will be getting a non-invasive blood test at ten weeks to test for any chromosomal defects through the University of Pennsylvania. This is much more desirable to me than a CVS or Amnio... although, if there is a problem that shows up with the blood test I will move on to get one of the other tests.
Why do I get genetic testing done? Well, for multiple reasons. One, my age pre-disposes me to chromosomal abnormalities. And two, because of Gavin's undiagnosed genetic syndrome - I have always preferred to be tested. Ed and I want to be prepared to handle whatever comes our way. After the shock of Gavin's silent delivery room, we would rather go in with facts and a plan. It won't change anything... but it will emotionally, mentally and perhaps financially help us plan.
This weekend I am hoping to chip away more of the mountain of thank you notes that are overwhelming my dining room. I know many of you are thinking - or writing to me - that I shouldn't worry about thank you notes. People will understand, you tell me. But I want you to know this...
Every single thing that has been done for us... in honor of Gavin... and for Brian... it all means so much to me. To think of anyone taking the time out of their lives to comfort us - feed us - pray for us - it brings tears to my eyes. It may take me a year (let's hope not) - and I hope and pray I don't forget anyone (if I do, let me know!) - but they will get done. It is important to me.
I also want to say thank you, again, for the contributions many of you have made in honor of Gavin. Whether it was to CaringBridge... Nemours Child Life Department... Gavin's Trust Project... or the Gift of Life Family House. Whether it was a dollar - or five hundred - or five thousand. We are so, incredibly grateful. We were most recently blown away by my husband's co-workers and friends from his former company, Accenture. They pledged $25,000 to the Gift of Life Family House in order to have one of their guest rooms permanently dedicated to Gavin. Ed, Brian and I will be headed down there in early June to choose a guest room and a plaque for the door. This is such an honor and it really rendered us speechless.
So many wonderful things have come out of this tragedy... showing all of us that there is beauty and lessons in even the worst experiences of our lives. You just have to pay attention - they are there.
Enjoy your holiday weekend. And if you haven't done your "random act of kindness" for my birthday project, perhaps you can thank a soldier this weekend. I would love that.