Thursday, April 11, 2013

Praying For a Miracle...

First let me say - as not to torture you - Gavin is holding on as I write this.  2:30am Thursday.

Second let me say - It is 2:30am so this will be pretty scattered.

Third let me say - thank you.  The support and love on Facebook and in my email and in my neighborhood has been unbelievable.

When today began, I would never - in a MILLION years - been able to predict how it would end.  Gavin woke up with his allergy eyes and a nose filled with boogies.  I put him in the bath first thing and decided that we'd all stay home from school.  Gavin was happy - he loves his bath.

Gavin, Brian, Miss Sara and I decided to pay Dr. Kang, our acupuncturist, a visit today.  I was hoping she could help me with the boys allergies.  Even Brian started sneezing when Spring arrived so early.  Since I kept the boys home from school, I was able to call and reschedule my appointment for earlier.  We fed the boys an early lunch and headed over.  Gavin was fine.

Dr. Kang treated Gavin first - with just acupressure and back massage.  While I was holding him, I noticed he was warm.  I thought I'd just give him some Tylenol as soon as we got home - we wouldn't be there long.  Then Brian got his treatment.  His first time getting acupuncture needles.  I sat with him while Sara cuddled with Gavin in the waiting room.

Something told me to check on Gavin.  I went out to the waiting room and switched with Sara.  She went back with Brian and I sat with Gavin - who I noticed was getting more lethargic.  Then he started to gag and we made it to the bathroom as he threw up.  It was then I decided to shut it all down and head across the street (literally) to bring Gavin to visit his pediatrician.  I thought that they could give us a dose of Motrin for his fever and just check him out before we headed home - 15 minutes away.  When I called - they were out to lunch.  So I decided to go even closer than across the street - to the Emergency Room.

We got into the emergency room and the doctor said he expected to give Gavin a dose of Tylenol, fluids and send him home in an hour.  Just as they finished giving the Tylenol suppository, I saw Gavin go into a seizure.  His eyes became fixed, his color changed and he was unresponsive.  The nurse called for help and within a minute or less it seemed the whole hospital was there.  His temperature was 105.

Within minutes after that, Gavin went into full cardiac arrest.  Seeing a doctor on the gurney doing chest compressions is not something I ever want to see again.  But that wouldn't be the case...

Ed made it to the hospital.  Sara had Brian out in the waiting room.  The doctor asked Ed and I to come out into the hallway and wait in the little tiny room.  Hell no.  I know what happens after you go into that little tiny room.  We waited in the hall.  It wasn't long before we were approached by the doctor again, telling us we should probably come in to say our goodbyes.  It was likely that Gavin wasn't going to make it.  But if they did get him stabilized again, they would medevac him to the hospital we take Gavin for everything - A.I. DuPont.

At this point, I was still "Laser Focus" Mom - as I always am when Gavin has an emergency.  I never want him to sense fear from me - see tears fall from my eyes - and I was very, very aware that Brian would need me.  Ed and I went in to talk to Gavin... and then I made my way to Sara and Brian in the waiting area.

"Brian, Gavin is very sick.  The doctors are with him in his room trying to make him all better.  He's going to be going on a helicopter  ride - how cool is that?  Do you want to come back with me to say goodbye before he goes?"

I couldn't think of anything else to say.  I didn't cry.  I tried to stay upbeat and calm even though I was shaking and terrified and angry and hopeless.  I carried Brian back in my arms while Sara walked behind us.  I was SO, SO proud of Sara for holding it together even though I KNOW she was falling apart, too.  It was (and is) so important to me that Brian have a sense of normalcy until this is over.

I walked Brian up to Gavin on the gurney - he was intubated and had IVs and looked pretty awful.  But Brian has seen Gavin looking pretty awful in the hospital before.  I just kept thinking - if Gavin does die, I want Brian to know that he said goodbye.  I was trying to think of Brian's future - trust me, it's a lot of pressure.  I just don't want to ruin his life because of how we handle this.

Brian clung tightly to me at first and I reminded him that Gavin was very sick.  He whispered to me, "Is it his allergies?"  No, buddy - it's not his allergies.  We don't know why he's sick, but the helicopter will take him to the hospital so the doctors can help him.  With that, I sat him on the side of Gavin's bed and he whispered in his ear.  I don't know what he said to his big brother, except I heard "I love you" at the end.  It ripped my heart in two.

I walked him out and Sara and Brian took off for home.  Thank God she was there.  Thank God she is who she is.  She is now at our house sleeping over while we're here with Gavin.  All night I got reports that Brian was doing fine - loving the one on one attention.  He didn't even ask any questions or appear nervous about anything - thank God.

Meanwhile, Ed and I jumped in his car and raced home for a quick second to pack bags and get our chargers and hug Brian one more time.  The chopper made it to the hospital - calling my cell just as I requested when they landed.  Gavin had remained the same - no better.

When we got to the ICU, we couldn't go back to see him for a good 45 minutes.  An hour drive - torture.  The 45 minute wait - also torture.  They were trying to put in an arterial line, which is a sterile procedure, and they were working on stabilizing him.

Once we got back to see him, we were greeted by a whole team of people.  Around 7pm they decided he was "stable enough" to be taken for a CT scan.  Just as they started packing him up, he went into his second cardiac arrest.  Again he was given compressions and medication and they had to shock him before he came back to us.

Soon after, my Mom and sister arrived.  I walked out to greet them only to get a call from Ed to come back.  He had gone into cardiac arrest again.  We are obviously very worried about the damage this is causing to his little body - it's all too much to handle or even think about.

The Cardiologist is confused at this point.  Gavin is having arrhythmias that they typically see in adults - not kids.  They did another cardioversion using shock and it helped a little to get Gavin's heart back into normal rhythm, but not for long.  He's still experiencing abnormal rhythms, high blood pressure, high heart rates and he's still completely unresponsive even though he's not receiving sedatives to make him so...which is not good.

Just a couple hours ago, he finally got that CT scan.  I thought that it might tell us about brain function, but I was wrong.  It's more of a quick picture to see if Gavin has any brain bleeds, masses, etc.  The CT scan came back clean.  It's an MRI that will determine brain function - and that is not high on the priority list at the moment.  They are most concerned about his heart.

Gavin hasn't responded to anything since his first cardiac arrest at our local hospital.  His eyes remain open and drifting.  At one point his pupils were two different sizes which made me fear the absolute worst - but now they're back to normal which just adds to this freaking roller coaster ride we're on.

In a few moments they will kick us out of the room for another sterile procedure.  They will attempt to insert another line in the artery in his neck - a central line.  This is so they can give stronger medications.  They will also do a lumbar puncture - they're wondering if it's possible he has meningitis.

As usual, Gavin is a total mystery to everyone but God.  He is holding on by a thread this morning and I am so, so grateful for the outpouring of prayers, love and support.  If you've been reading our story - even for a couple weeks - it's hard not to root for my son.  He's overcome more than most grown ups in his short five years.  This was not supposed to be part of his story.  I know that Gavin has big things in store for this world - and dying at 5 is not one of them.

It's just not.

Please continue to pray for my sweet little boy.  And please, please pray for his brother.  Brian needs Gavin.  And so do we.



191 comments:

  1. Praying. Praying. Praying like my life depends on it too.

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  2. Sending out love and lots of prayers for Gavin, and your entire family.

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  3. Continuing to pray Kate...thank u for the update. All of the ps mommies are so sick over this. If anyone can pull through, its Gavin. Love and hugs

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  4. Just read your story for the first time last night. Praying for all of you. Nick

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  5. Praying, and have been thinking of you all day as soon as G posted a note on her Facebook......

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  6. I enlisted my church choir to pray for Gavin after rehearsal tonight... I am still praying now.

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  7. Can't stop thinking of you and your sweet Gavin. Thank you so much for the update. Sending love (it's total stranger love, but as I sit here with tears streaming down my cheeks it feels pretty real to me) and prayers and hoping so hard that Gavin is able to keep fighting.

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  8. I am praying hard for Gavin. May he have all the strength he needs to overcome this.

    And I am hugging you tightly and sending you all the strength I can send you from here! xoxo

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  9. Can't sleep...just keep praying for Gavin...for God to enfold him in his healing grace and give the doctors the divine direction to help him survive and recover. Praying for strength and peace for Kate and Ed and thanking God that Sara is there for Brian. Just keep praying........

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  10. Being in Australia, I have been able to follow your journey today as it has been happening in my daytime. And I don't know how often I have just stopped and said 'Please God'. I REALLY don't want to go to bed tonight. Keep the updates coming Kate as there is a whole world behind Gavin and you. With a huge hug. Michelle xxxx

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  11. I am praying for Gavin. I can't sleep and you are in my thoughts. Much love from the West Coast.

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  12. have been praying all day & will continue to do so. you are all in my heart.

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  13. I'm so shocked - I can't believe what I am reading. Praying for you all.

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  14. So praying!
    Lord, You know Gavin's body. Put Your healing hand on him now. Build a hedge of safety around this family. Hold them close. Please give the doctor's wisdom as they do their jobs.

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  15. Don't even think the D word Gavin is not going anywhere (please God I don't usually ask for much from you but right now I'm asking PLEASE God make Gavin better).

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  16. We are praying for all of you, especially Gavin. This isn't supposed to be part of Gavin's story. Thanking God for giving you the instinct to know what to do and that you were in the hospital when Gavin went into cardiac arrest.

    Geoff, Elayne, Ali, and Drew

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  17. Praying for your sweet little boy...

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  18. Praying for God's healing touch on Gavin's body, peace & rest for your family, and wisdom for his medical team. Your family is so loved!

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  19. Kate when I think back over the years since we met on the TTC35 board - so much has happened! I've cheered and rejoiced for all Gavin's victories. I cried when he walked. I pray this will be another story of how Super Gavin triumphed once again. You are the bravest person I know Kate and a wonderful mom. I'll go to St. Pattys as soon as I get to work and light a candle.

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  20. I literally do not even know what to say. I don't know you and yet I am so SO proud of how you handled it all for Brian. You will be too one day - as you sit around the table and recount for Gavin how he scared the crap out of all of you with this crazy episode. Because it has to be just that, an episode. A blip on the radar of life, not the defining moment. You're so strong, and it's impossibly unfair to expect you to continue it - but you have to - for Gavin, for Brian, for Ed. And most of all, for you.

    Today is "Trek Day" - a day to celebrate children. We'll be adding Gavin to our celebration list today. Thinking of all of you guys!!!

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  21. Make sure they check for Meningitis. My brother had the same symptoms a year ago and almost died from the Meningitis. Please make sure they do testing for this terrible illness. Prayers that Gavin will be ok.

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  22. Praying for all of you and admiring your strength. Soak up the outpouring of love and support and let it nourish you.

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  23. Sending prayers and hoping the spinal fluid is clear

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  24. Kate, i'm so sorry you and Gavin and your entire family are going through all of this. You have a beautiful family. I will continue praying. Love, Diana

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  25. Oh sweet Lord, Kate! Hugs and prayers to you and your family. Hang in there and know we are all pulling for you!

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  26. Sending love and lots of good thoughts your way.. HOPE HOPE HOPE

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  27. I first heard your story last night through Momastery and by the middle of the night, I was waking up to scroll and see if you had posted updates. Praying fiercely for you all.

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  28. Kate, I have been thinking of nothing but Gavin and you. I hope Gavin responds to medication today. I hope you have more answers today. Gavin is a FIGHTER. He has overcome so much. Keep thinking that. Love you.

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  29. Kate, I just came across your blog because someone posted it on my FB feed from Glennon's page. My boys (5 and 1.5 yrs old) are praying today for Gavin and Brian. Thank you for giving updates. May God the gentle Healer touch Gavin even right now by His Spirit.

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  30. Praying for you and your family. I read about your story on the facebook page for Momastery and I have been looking for updates from you. Will be praying today!

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  31. We are all praying for your and family. Lots of prayers.

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  32. I am sitting here in complete shock. I can't even believe what I just read. I am praying for you all. I don't have a Facebook account but I can see your Twitter feed. I will check for updates. God Bless.

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  33. Kate, heard about you last night through Glennon's note on facebook, and I've been praying since. Thank you so much for the update. Sending love from Minnesota, and continued prayers for Gavin and your family.xoxo

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  34. Praying for more and more miracles Kate. So sorry you are going through all this, and without any prior warning really. :( Your little guy has made it through so much already. I pray he continues to be your little miracle child.

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  35. Kate, Ive been thinking about Gavin all night. Make them test for meningitis, it happened to my sister and they didnt think thats what it was and wouldnt test until my brother who's a dr got on the phone and insisted, sure enough it was and she was nearly in a coma by that point, eyes rolling, unresponsive like Gavin. She pulled though.
    Much love to all of you. We are routing for your wee man in NJ and praying hard for a complete recovery.

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  36. I don't pray, but I'm sending positive thoughts your way to your family. I told my son who is Brian's age to send extra positive vibbes his way too. Sometimes life is just so unfair.

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  37. Prayers being sent from Ohio for your Super Hero. He will survive this bump in the road as he as proving in the past that he is such a super hero. Continue to be strong Kate even though it is tough he needs his momma now more than ever, for you are his voice.

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  38. Hi Kate - I'm a friend of Caitlin Domanico's and a special needs mom. I am praying for you, your sweet boy, and your entire family. Sending you love, strength, and miracles. My heart is with you.

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  39. Praying for your family and sweet Gavin. I just started reading your blog yesterday after seeing a post that Glennon left on fb. Stay strong. As a brand new mom I can't imagine what you're going through, but I will pray. Hugs from Chicago for your family.

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  40. Much, much love to you and your family!

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  41. Praying for Gavin, your family and the medical team.

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  42. Much, much love to you and your family. Your little one is in my thoughts!

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  43. I found out about this on Momastery and am praying for you and your family!!!!!!!

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  44. I just saw your blog yesterday. I'm crying and praying. I don't know how you even got this post up this morning.
    You are right. God knows. Keep praying. We are in Wisconsin.

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  45. I just saw your blog yesterday. I'm crying and praying. I don't know how you even got this post up this morning.
    You are right. God knows. Keep praying. We are in Wisconsin.

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  46. I just saw your blog for the first time yesterday. I'm in awe of your strength. We are praying for your whole family.

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  47. Thinking of you and praying for Gavin, Brian and your whole family. Much love from a reader in Maryland.

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  48. I'm praying so hard for him!

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  49. We are praying from Connecticut with all we've got... that little boy is the most amazing inspiration... sending love.
    Tara

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  50. Sending thoughts and prayers for Gavin and all of you. Gavin, we are pulling for you!!!! .

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  51. I came over from Momastery. Praying for your sweet boy and your family. I am so sorry this is happening.

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  52. Praying for good news for Gavin today! Sending thoughts, prayers, hugs, tears, faith, strength, and hope.

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  53. sending prayers your way.

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  54. I couldn't get to sleep last night, tossing and turning thinking about Gavin. He was also the first person I thought of when I woke up this morning. I keep sending prayers of "PLEASE!!!" up to to God. Much much love to you and your whole family.

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  55. Thanks for taking the time to update - the world loves your boys. We pray for the miracles Gavin needs!

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  56. Because of your beautiful writings, I feel like I know little Gavin and Brian personally. That would explain the tears that just won't stop and the fervent prayers being lifted up constantly for Gavin's healing. Being a mom of 5, I can't imagine how you are holding your heart together right now-but you are. Because you are so strong in the Lord. He with be your strength when you run out. Hang on girl. Florida is praying for you guys.

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  57. Loving and praying for Gavin, you, your family and Brian.

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  58. Haven't been following for long but am rooting for Gavin and your family! Many prayers going out to you! God please carry Gavin and his family in your hands through this! Sending much love from VA through Glennon!

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  59. Just read your blog for the first time last night - saw your page on Facebook. Praying for Gavin and your family and hoping for good news.

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  60. stumbled on your blog a few weeks ago and was heartbroken when i saw your story on G's facebook. i am praying for you and your family; crying for you and your family; hoping for you and your family. keep faith, as you always do.

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  61. Praying, praying for Gavin. from Westminster MD

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  62. praying for Gavin and your family.

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  63. This sounds eerily similar to the day we nearly lost my son. He went into the hospital for "seizure" and it wasn't until three days later, we discovered he had a stroke. His CT upon admission into the hospital showed nothing so we didn't know about it until day 3 when they did the MRI. Push for the MRI, CT scans won't show an early stroke. Keeping your son and your family in my thoughts and prayers.

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  64. I couldn't slee last night for worrying about you guys. I am praying so hard for your sweet Gavin and your family I have no fear he will beat this!!! Love you guys!

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  65. Hi Kate
    I found your blog through another blog I follow this is the first time I have read any o your post and I am still praying for Gavin and your family. I pray with all of my heart that Gavin pulls through this

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  66. I just met Gavin last night through your blog. I've been praying and will continue to pray for him, Brian, and your entire family. Just keep praying...

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  67. I just read your blog for the first time and I wanted to let you know I'm praying for Gavin!!! I found you through Love That Max and I've shared on my facebook. Just lifting your entire family in prayer!!!

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  68. praying in CA...thought about him when we went to sleep, praying he would still be here when I opened my eyes...and he is! FIGHT lil man!!!

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  69. Just read your blog for the first time last night - saw your page on Facebook. Praying for Gavin, Brian and the rest of your family.

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  70. Hear our prayers.

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  71. Dear Lord--hold this boy, and his family in Your hand. They need Your special attention today.

    And Mother Mary, if you could watch over this Mama as she walks this path. Ask your Son to heal this child and her heart, all at once.

    In Your Name we pray. Amen.

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  72. Prayers and thoughts from London. Gavin, hang in there, little buddy. Lots of people are rooting for you.

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  73. Started praying yesterday with G's post, and had to come back for an update. You are the very definition of warrior.... I can't write, carry-on... I can't do it, how do you 'Carry-On' when your 5 year old is fighting for their life??? I can't figure that out, my world would stop, so as G put it once before, I would just hold that space for you and keep your sweet family covered in prayer. Come back to your mama and family Gavin, this world needs you!

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  74. I follow your blog and Gavin has been an inspiration. Sending my prayers from Malaysia. Stay strong and may God be with little Gavin and your family.

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  75. Praying for your family.

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  76. coming to you from Momastery- and praying like heck that Gavin can be treated and released.

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  77. Prayers, precious Kate and sweet, sweet baby Gavin <3 Just hold on, little guy and Mama. Don't worry about being strong or brave -- just be well.

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  78. Praying for Gavin and your family !

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  79. Began praying for Gavin and all of you, after reading Glennon's Momastery post yesterday and will continue to do so, as you walk through these days. Margie

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  80. God has beautiful things planned for your sons, Kate. You are their superhero mom and I pray that Gavin will get better very soon! Please God, give the Leong family peace and comfort.

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  81. Sending Prayers Up For You Little one

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  82. You mentioned that if you've been following your story even for a couple of weeks, it's hard not to root for your son. I've been following your story for less than a day, and it's truly impossible not to root for your son. You are a truly inspirational family. Love is on your side. I'm am praying for you all.

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  83. Coming to you from Momastery, too. Thinking of you all.

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  84. Praying for comfort and healing for sweet Gavin and for strength, courage and comfort for all of you. I've only just found you yesterday via Momastery - but your story - Gavin's story - is both heartbreaking and inspiring. I agree that he has a BIG purpose and I pray that God grants him more time to touch the lives of more people. _ Praying for you in Kansas City, MO. God Bless all of you.

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  85. Best thoughts coming from Denver.

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  86. Sending prayers your way for Gavin's complete recovery, and strength for you and your family.

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  87. I'm lifting you and your family up in prayers. I wish I had the perfect words to make things easier, but I know in these situations, the best thing to do is say that you are in my thoughts and prayers and I'm sorry that you are going thru this. I've been a quiet stalker for a while, but I felt the need to show some love.

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  88. Wow...you inspire me. I teach parenting classes and am a Mommy to 2 boys, ages 14 and 20. I happened by your website and want to tell you that you are amazing!! Keep fighting! Keep strong...Gavin and Brian need you! I know you must be tired, but you are doing things that need to be done!! I'm not sure where you live, but I live in Orange County, CA. I would love to have you in my parenting class someday, or would love to be your friend. I will refer all of my parents to your blog, thanks for being so strong for your kidlets!! Wow...just WOW!

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  89. Praying fervently for Gavin, you, and your family.

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  90. Praying for you and your sweet little boy... And sending love xo

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  91. Oh my gosh, I am so sorry. I can't even imagine. My children have also struggled to get to the point they are and I just can't even imagine. Sending you so much strength.

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  92. Sending thoughts of love, hope and prayer your way.

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  93. So shocked by this-can only imagine how you are feeling. Praying for Gavin and you all. May today bring an amazing turn-around with no lasting damage.

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  94. Praying for Gavin and your whole family. And for Sara. What a blessing she must be.

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  95. I just read your post and found Gavin's story deeply moving. Please know that we are praying for Gavin's recovery.

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  96. Prayer, prayers, prayers ((hug)))

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  97. I'm sending you positive thoughts and prayers for strength and healing. *hugs from a stranger*

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  98. Praying for Gavin and your whole family. Love and prayers being sent!!

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  99. Sending prayers your way.

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  100. Oh my goodness. This is heartbreaking. I have a Gavin too, and while I read, I couldn't help but picture him. I will be praying hard for your little Gavin and for the rest of your family. I'm sorry.

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  101. Sending so much love, and prayers <3 I simply cannot imagine. :((

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  102. Kate, I was made aware of this situation by my friend, Wendy Chamberlin. Please know that I am praying for Gavin, for you and your family! I have spent a good part of my day reading your past blogs. I am amazed by your strength and gift with words. You make everything so easy to read! I miscarried our first child and care empathize with your story on a very small scale. My heart is burdened for you all!! I am praying for a miracle for Gavin today! I will put him on our prayer list at my church as well!! Sincerely, Bobbie Gildroy

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  103. Sending all the love, healing, hope, and prayers to you and yours.

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  104. Prayers!

    ((hugz))

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  105. Came to your site from Momatery last night - read many entries in your blog...and cried and cried....and praying and praying so fiercly all night and all day for you, Ed, Brian and most of all Gavin. Praying for miracles, healing and the Grace of God to be with all of you. Going back to praying for all of you....

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  106. Sending prayers to your family and little Gavin.

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  107. I cannot begin to imagine. Thoughts, prayers, and {HUGS}

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  108. OH Kate! Thank you for taking the time to update us. I have been praying hard since I saw G's post. Obsessively checking Twitter and FB for an update. You are such a good strong mama. Brian is in good hands with your Sarah, you handled him in that situation well - protecting his heart better than most of us would have thought to.

    Gavin is a tough guy and I want to follow more of his amazing-ness. We are all praying for answers and healing.

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  109. Love and strength and prayers to you and Gavin and the rest of your family! I will keep you in my thoughts!

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  110. Praying for you, your family and Gavin.

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  111. Praying for all of you.

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  112. Praying hard for Gavin and your family. Love to you.

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  113. I have a 5 year old boy too. I have never read your blog before tonight, but I am crying and asking Jesus to heal your precious little man, and to give you peace which surpasses all understanding...... hugs from Australia

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  114. Sending so much love your way.

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  115. This is the first I've met your son and I'm already rooting for him! Prayers for Gavin and the entire family from Colorado!!

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  116. Please update when you can. Some of us only have your blog for information. I've been following Gavin since day one. Praying!

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  117. Praying for you all!

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  118. Praying & sending love <3 Jennifer

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  119. Praying for peace and healing and comfort...in every sense. You are so brave and strong for sharing. Thank you. Your story touches my heart and I will continue to pray for you and your family.

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  120. May comfort and courage and wisdom and love surround all who love this little wonder of God.

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  121. Praying from Calgary, Canada

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  122. Praying so hard for you all.

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  123. So much love to your family right now, praying with all my might.

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  124. If I could 'like' the 135 comments above me I would ... praying for your sweet boy.

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  125. Sending prayers and love to your whole family!

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  126. Ed and Kate: I am thinking of you and of Gavin and sending you tons of positive energy. You're an amazing set of parents and Gavin is an amazing boy. Please let me know if I can be if assistance in any way (you know I mean it Ed). Take great care.

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  127. So much love and good thoughts and prayers for you and your family.

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  128. Praying for you right this very minute. Love from our hearts to yours.

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  129. Sending prayers and healing thoughts. I pray for you all.

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  130. Sending prayers to all of you and have posted your link on my church's intranet too. You are an amazing mother -- fearless and unselfish in every way.

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  131. Prayers and hugs for Gavin, you and your family!

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  132. Sending lots of prayers from Tampa, Florida to Gavin, your family, and his doctors!

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  133. Love, light, and so many prayers being sent to your family and little Gavin.

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  134. Wow. I've been reading your blog for a few months now and can't believe that this is happening to Gavin. I know you've heard this a thousand times, but praying for you.

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  135. Praying for you all. Sending love.

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  136. Praying for your Gavin and family.

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  137. Praying for sweet Gavin xxoo

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  138. Sent over here by Franchesca @ Small Bird Studios...
    Needless to say, my heart is breaking and praying, praying, praying for your family as a whole & especially your little boys!

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  139. I've only been following your journey with Gavin for a couple of months, but in that time have grown to admire his fighting spirit and yours too. Sending you love from New Zealand.

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  140. A blogger I follow shared a link to your post - I haven't read your family's history but please know that you are all in my thoughts and prayers as you live this unthinkable experience. With all the prayers and love I can offer...

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  141. Sent here from Rants From Mommyland. You have all my prayers, good thoughts and HOPE. Pure HOPE. You, your family -- you're all in God's hands and I pray that you are cared for.

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  142. Kate and Ed, I only met you all through your blog yesterday after Momastery posted about your drive to the hospital, and I've been praying for Gavin. Just now, looking at your blog, I see that Gavin went to the dentist two days ago. I don't know his medical history...but if he has a heart murmur or may possibly have one, is it posible he has an infection in his heart valve(s)? (I have a congenital heart murmur and my dentist always made sure I had an antibiotic before a cleaning because bacteria get knocked loose.) I'll keep you in my thoughts and prayers.

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  143. Can't stop thinking about Gavin and your family. Checking FB constantly for updates. Gavin reminds me a lot of my little boy Andrew who is 4 and I can not even begin to imagine what you are going through. You are an amazing mom and Gavin and Brian are lucky to have you. Praying for Gavin's recovery and for your family.

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  144. I started reading about you and your family a couple of years ago on caring bridge. I check in daily and I felt like I was hit on the head with a brick this morning after reading your latest entry. I am thinking about all of you and especially little Gavin. Positive thoughts being sent your way.
    Shirley L, Brecksville, OH

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  145. My family is praying for your family. Gavin is very lucky to have such a strong beautiful family.

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  146. Praying and sending my love and strength. Xoxo

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  147. Praying hard for Gavin and your entire family. Have faith that he will overcome this like he has so many other things.

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  148. We are praying for you from Canada - thinking of Gavin and Brian and all of you as you face this together....be loved.

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  149. Thanks Kate for being forever strong as you are and only--stronger.
    Hang in there. I pray that it's not time for Gavin to go see the Lord.
    Will make a prayer for him. He is strong. Take care of yourself too
    at this critical time. Mee-Ling

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  150. I am praying for Gavin, you and your family.

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  151. Hi Kate, so sorry to hear the news about Gavin, but we know that he is a fighter!!!!! Trusting and believing that GOD is going to take care of him and your family. It may seem like you are alone, but you have all of your Chasing Rainbow family praying for you guys.

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  152. I don't even know what to say... my family is praying, my coworkers are also praying for "our lil superhero" and your entire family. Stay strong and know that the entire world is praying for Gavin

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  153. Praying so hard for Gavin. Been thinking about you all all day.

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  154. Praying for you and your family, from Anderson, IN. God bless you all. Stephanie

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  155. Praying for Gavin and your entire family.

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  156. Elizabeth ErhardtApril 11, 2013 at 5:19 PM

    Has he been checked for Kawasaki Disease? I will try to put a link to a page describing it, here. I am praying for all of you.

    http://kidshealth.org/parent/medical/heart/kawasaki.html

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  157. Praying for Gavin, you and your family. May God give you strength, wisdom and a miracle.

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  158. So sad over this unexpected and devastating news--- praying.

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  159. Praying for Gavin and your entire family from Ashburn, VA.

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  160. Praying for a miracle for your sweet Gavin. I have been where you are. May the One True and Only God, Maker of Heaven and Earth hold you and your family in the palm of His hand. May the angels be around you all keeping you safe from all harm. May the blood of Jesus, who stood at that whipping post, to bear stripes on His back for our healing, heal Gavin. By Jesus stripes we are healed. May the doctors working this case have the mind of Christ and wisdom from God to see what needs to be done to bring Gavin to his full strength and health. God be with you all. susan

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  161. Sent over here from RFML. I'm so sorry that your precious son is so ill, my heart is breaking for you, and I'm hoping with all my heart that he pulls through.

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  162. Praying for Gavin and your entire family.

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  163. Kate- We don't know each other but, I have known Ed for almost 25 years. Please know my whole family is praying for the Leongs tonight (especially Gavin). We were in tears reading your post and are with you all in spirit and prayer.

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  164. Praying for sweet Gavin and your whole family, and sending lots of love. <3

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  165. prayers for your whole family. lots of prayers

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  166. Ed and Kate, words fail me but I have been following Gavin's story since day one. Since ivillage. I am crying and my entire family is so upset and we are praying for that miracle with all our heart. Gavin's story is not to end at 5. He still has a lot to do and continue to inspire us. There are so many people that loves him and loves your little family. Faith have faith he is going to pull through.

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  167. prayers and strength for Gavin and your family. my thoughts are with you.

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  168. Found out via Love That Max am praying for Gavin

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  169. Hi, my name's Krissy, I'm friends with the Sharp family- just saw this on Kara's status. Praying for your little boy. Thinking of you tonight.

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  170. Lots and lots of prayers and positive thoughts for Gavin and your whole family.

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  171. Sending prayers for your family! May God heal your prcious little boy.

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  172. Thoughts and prayers to the whole family ((hugs))

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  173. Sending prayers to all of you from Stowe, Vermont. We, too, have a special blessing from God. Understanding and feeling your pain.....

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  174. Sending lots of love and prayers for you and your beautiful boys and family. Thinking of you all so much wishing you comfort and healing for your precious son. Love and healing hugs from my family to yours.

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  175. In my thoughts and prayers for all of your family at this difficult time. Prayers that Gavin will find the strength to pull through x

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  176. I have been in your situation. My baby girl was medically fragile, fine in the morning and then not. My praise to you for taking Brian to see him. And I pray for you.

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  177. Hi there,

    I found your blog through another blog. My thoughts and prayers are going out to you. I pray that all will be fine with you and your family.

    Jessica
    The Wondering Brain

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