I think I'm still in shock mode. I promise in a few days I'll be back to my "normal" writing with new photos of the boys and news from their busy lives. But right now - all that's on my mind is this Lyme Disease thing.
The tough part, I hope, is over. The last few months I've been suffering in silence mostly. The days I didn't write? Those days I was likely sitting in front of the computer either trying to focus...trying to keep my eyes open...or trying to remember the day. In the end I said "screw it" and closed the computer. Hopefully the antibiotics will kick in and I'll start to feel better soon. I still feel crummy - but at least now I know why. Today hasn't been a good day - I'm actually writing this from bed.
I want to address a comment that came through (that I did not publish). Someone kindly told me to give him or her a break. The 'jist' was: It's Lyme Disease - don't be so dramatic - take your antibiotics and it will go away. I've had it - and friends have had it. Just shut up about it already - you're so dramatic.
Well, for one - it has already been established that I'm dramatic. It's a requirement in order to have your own blog about your life. And two - I think I have a very good reason to fear Lyme Disease. My Dad contracted Lyme in the 80s. Before then, he was athletic and in shape and healthy. Lyme practically paralyzed him. While he went on to recover, I look back and realize that health problems cropped up years later. Most notably - heart problems and his stroke. I don't want that for my future so I have been doing tons of research on co-infections since Tuesday (which is very difficult with the brain fog I am dealing with). I also have a special needs child with neurological issues who could very well have contracted this disease from me - we don't know for sure, but he'll be tested in a few weeks. The weight of those two things alone has me panicked.
Sometimes a month of antibiotics just doesn't cut it. I know that's the course of treatment, but I don't want to blindly, robotically follow along and assume that will kill the Lyme. Different bacteria can enter your body that group together and hide. I know it sounds crazy - but the Lyme tries to preserve itself in the body using something called "Biofilms" to protect the bacteria from antibiotics. It could be that my Dad was treated successfully for Lyme...but there were other bacteria like, Borrelia, Babesia, Bartonella or Ehrlichia that were left behind and left untreated. It's just a theory. It was the 80s and they didn't know as much then. Now you can be tested for these bacteria and treated...hopefully taking the issue of developing other medical problems because of the Lyme off the table.
I can't take any chances. We all know I don't have the best luck.
I was able to get an appointment for this Wednesday to meet with the Infectious Disease doctors at DuPont. Gavin will be with me. They are very knowledgeable about Lyme and I'll hopefully get all of my lingering questions answered. We'll also discuss the possibility of Gavin having it and what we would do if he does.
I did finally watch that documentary that was recommended. I hope that some (or all) of you will take the time over the weekend to give it a look. It will open your eyes - VERY wide.
You can watch it free on Hulu right HERE.
Lyme Disease. I still can't believe it. It's definitely a "twist" in my life story that I didn't expect.